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The diagnosis of Retinitis Pigmentosa or associated conditions is a traumatic event not only for the diagnosed but also for the entire family unit. We urge members who are newly diagnosed, and having difficulty, to seek counselling form a qualified counsellor. 

Your GP or your Ophthalmologist will be able to point you to the right professional in your area.

A member of Cure Blindness Australia is a qualified counsellor and can provide this service if required. You will need a referral form your medical professional. 

For more information contact us on 1300 900 006.



Approximately 15,000 Australians suffer from an inherited retinal disease, not including age related macular degeneration. We raise awareness and funds for scientific research, information and peer support, to seek a cure for people and families affected by retinal degenerative diseases.

For answers to the following questions click on the link below:

What are the symptoms of RP?

What causes RP?

Is there any treatment?

Is only vision affected?

Does "night-blindness" mean a person has RP?

How quickly will I lose my sight?

Living with Retinitis Pigmentosa?

How can I help a friend or family member?

Why should I continue to see my Ophthalmologist?

How can I protect my eyes?

Is there any pension rebates?

Driving Issues

What about my career?

Diet and Exercise?

Legal Blindness

Effective Guidance

Guide for Parents

Young People's Issues

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